Sunday, September 7, 2008

Treatment day 2

Today was perhaps the best day we have had so far but a long way from where we need to be. Jake woke up and showered. Then we went downstairs to the hotel lobby to have our first complimentary buffet breakfast. Jake had a fair amount of energy and looked very nice. He ate very well and loved the buffet. Then he went back into the room and rested for about 1 hour and we then got up and went to the clinic. Jake had his treatment. When he got out of the treatment he told me that he had a moment lasting about 3 seconds where he felt what seemed like a beam of electricity shoot down his left leg to his toes. I discussed it with Dr. Sibia who said "Lets hope it is a good sign. " It is certainly too early to make any assumptions but I will assume it is a positive as normally he could feel nothing in his left leg, but time will tell.

We returned to the hotel following the treatment and Jake slept from about 1pm to 4pm. At that time we decided to go down to the cafe in the hotel and treat ourselves with some chocolate. The evening buffet does not start until 7:30 and I thought we should get some energy into him. Initially Jake was a little hesitant but after he was down and had some coffee he perked up. We had some dessert, then went back to the hotel room and got through 10 minutes of Star Trek before we both spaced out and started to doze.

Dr. Sibia has prescribed some nutrients for Jake to take to get his energy up. He attributes it to the lasting effects of chemotherapy, jet lag, and the long travel from New Delhi to Ludhiana. I additionally attribute it to some boredom. I believe that we will go through some tough times during the course of this next 30-60 days. The difficulty will be tempered by potential good results we get from the Cytotron. If he experiences any return of function to his left side then the rest of the treatment will be a breeze. However at this moment, we are both suffering from fatigue and a general disconnection from family. In this hotel, there are not a lot of places to go and right now Jake is too tired to do anything anyway. but hopefully if the Cytotron works then the combination of return of some function and the dwindling effects of the chemotherapy will make things a lot easier. Any positive results from the Cytotron will be a key factor in keeping Jake going. Otherwise family and friends will be an important factor. I would encourage anyone and everyone to send a email to moptop464@yahoo.com which is Jakes email address and congratulate and affirm what we are doing. I think he needs a lot of affirmation from family that he is doing the right thing and to make sure he sticks it out. Be sure to let him know how proud we are of him.

1 comment:

Anonymous said...

I'm so glad I got to talk to you guys today, and hear that things are going well. And I know they will keep going well, better and better. This is what you got to do, and stay strong! My heart is with you guys over there, and everyday that you are there :). I love you and miss you guys so much!