Day 7 of Treatment

Well, we finished our first week of treatment. Dr. Sibia feels that Jake is walking better although I do not see any difference. Jake tends to walk better sometimes then others. He definitely looks much better and healthier off of the chemo. He is still tired a lot of the time but day by day he seems to stay up a little longer. I have finally become acustomed to the change in time which was brutal and can now work on by brothers program barring the constant power outages that sometimes leave 30 minutes of work gone. I have to get used to saving my work more often. I am waiting for a battery for my laptop which will save me most of the time. During the course of this week of treatment Jake has had a small "Knot" to describe it in the rear of his head which is near one of the main tumors that is being treated most directly. It is hard to know whether this is a good or bad sign. Yesterday during treatment he said he felt "popping" in that area and I will hope that is the destruction of the tumor. The 'knot" feeling comes and goes, never significant but rather more annoying and after a discussion with the doctor we have decided just to keep an eye on it and be certain that his vision remains good, that he has no nausea, and no headaches. As long as we do not get those symptoms, we feel it is safe not to assume anything is bad or at least a waste of our time until we know differently. It is good to know that Dr. Sibia is a close friend of R.V. Kumar the inventor of the Cytotron and that his case is being handled jointly by both people. Everyone in the hotel seems to know about Jacob and they are all sympathetic and very kind to us. Three weeks from today or perhaps the Monday following which would be October 6th (by coincidence his dog Indy's birthday) Jake will have his next MRI and we will decide whether or not to continue with this treatment. We will hope for a minimum of no growth and hopefully reduction and death of the tumors. The only thing that would elicit a MRI sooner would be symptoms of trouble.
I am always best when I have a plan so I have begun the process of what might be the next step in the event that this treatment is not successful. I try not to live in the future and try to remain in the present. Almost 1 year ago, Jake and I talked about what would happen if he were to die. I said that this was a poor way to spend his time and that people die every day. It was in his best interests to live in the now rather then in the forseeable future. As my friend Dale Beck told him, "You should think more about living then dying". And as my friend Patti Inzano told me, do no waste your time on what if's. Live in the now or the now is wasted. Many of you reading this may remark of my positive attitude and drive. Though a lot of it is true, I still worry and dread many hours of the day. Sleep is a comfort and a vacation from reality. I really am not much better than most. I perhaps am just a convincing writer.