Last night was a particularly difficult night for me and Jake. (Jake and I... sorry Dad) Jake had a small headache in the area of the tumor and no other symptoms, but considering it was a headache it was stressful to contemplate the possibilities. There was really not much I could do other than give him some medicine like Tylenol or Vicodin to help but it really was not that bad so we left it alone. It was more about what it might mean. I find myself obsessed with every feeling he gets which I suppose is probably not a good idea. I went to sleep at 9:30 pm stressed and resigned that there is nothing I can do but wait for results in three weeks. The next day, today I talked at length to Dr. Sibia about the situation and also discussed a game plan so that if there was a problem such as a severe headache, or seizure that I would know who to call and what to do. He had just been on the phone with Dr. RV Kumar, the inventor of the Cytotron and said that the Cytotron treatment can cause some edema (swelling) around the affected area. Therefore it is possible that the headache is a good thing. This was a potential relief although only the MRI will tell and that is about 3 weeks away. He gave us some medicine in case of headache and some other in case of severe headache along with ways to contact him any time of the day or night. I felt very comfortable and relieved that the doctors at this clinic are so receptive and compassionate about all we are going through. Having taken Jake away from all his family and friends sometimes seems selfish for me although it is with the idea of treating him with the absolute best thing I can find at the time. As this technology is so new it is really up to me to decide technically what I think is best as I know standard treatments have already been tried. I still believe that this treatment could bring about a huge success and since it has no side effects, it could be done over again if needed. Dr. Sibia has sent me a power point presentation about India to help us feel more at home, which I am posting for all to view if you like. It is very informative. Tomorrow, Dr. Sibia is going to video the procedure of Jake getting the treatment and then narrate it so that I can post it and you will be able to see what we are doing.
Here is the link to the powerpoint. You have to have Powerpoint installed to view it.
www.intelligentsolutions.tv/india/india.ppt
You may want to right-click on it and save as since it takes a minute to download
Sunday, September 14, 2008
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For folks who don't have PowerPoint installed, a free viewer from Microsoft can be found at the following URL: http://www.microsoft.com/downloads/details.aspx?FamilyId=428D5727-43AB-4F24-90B7-A94784AF71A4&displaylang=en
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